TNnMe: Trigeminal Neuralgia and Me
BREAKING NEWS:
WE did it!
We have the attention and support from the World Health Organization (WHO)
I want to give a big THANK YOU to Tedros Adhanom Ghebreyesus for reaching out to me to discuss the issues that we're asking from the World Health Organization.
They will be consulting with the relevant technical programmer on listing Trigeminal Neuralgia on the health topic list. Also, I will be discussing with a WHO colleague on the rapid progress being made in the adoption of ICD11 in the different Countries. They are very impressed by our commitment on awareness and look forward to working with TNnME!
A Big THANK YOU to Kathy Somers Sarah Heavey Brenda Sharp Mandi Ginn-Franz for your dedication year after year on lighting the skies Teal!! A BIG thank you to all TNnME Members, Friends, and Supporters for Raising your voices, sharing your stories, for the laughter and tears.
Special thanks go to all my TN Sisters & Brothers and to name a few I'm forever grateful for your love and support!
Thank you, Tatiana Colledan Nikki Samuel Kate Chappell Lagi T Leau Kathryn Magliaro Alma Browne Rebecca Thorpe Kim MacDonald Krause Jeanette Lopez Bulthuis Tara Hann-Shuey Tara Snay Turley Rosemary Grant Barbara Sue Attwood Lee Shanks Anthony James Mattocks The Facial Pain Research Foundation The Facial Pain Association John Speece Outi Elo Chris J. Nolze Kristen Elizabeth Sears Gladys M Rhodes Kenny Wilmont Elizabeth Sirrell @betsytayloralexander Maureen Stone Carol Levy Mabel Contreras Nancy Lawrence Brian Whitaker Wendy McAninch Megan Forney Hamilton Avis Frick William Clark Dennis L Wiant Janet McGee Stephanie Blough Martha Garrett Brogan Lefebvre Woll Dawn Monarch Ron Blair Angela Harrell Freeman Erika Conrad-Wess Howard TechauCathy L. McKinnon If my brain did not tag you please know you're also in my thankful heart!
WE did it!
We have the attention and support from the World Health Organization (WHO)
I want to give a big THANK YOU to Tedros Adhanom Ghebreyesus for reaching out to me to discuss the issues that we're asking from the World Health Organization.
They will be consulting with the relevant technical programmer on listing Trigeminal Neuralgia on the health topic list. Also, I will be discussing with a WHO colleague on the rapid progress being made in the adoption of ICD11 in the different Countries. They are very impressed by our commitment on awareness and look forward to working with TNnME!
A Big THANK YOU to Kathy Somers Sarah Heavey Brenda Sharp Mandi Ginn-Franz for your dedication year after year on lighting the skies Teal!! A BIG thank you to all TNnME Members, Friends, and Supporters for Raising your voices, sharing your stories, for the laughter and tears.
Special thanks go to all my TN Sisters & Brothers and to name a few I'm forever grateful for your love and support!
Thank you, Tatiana Colledan Nikki Samuel Kate Chappell Lagi T Leau Kathryn Magliaro Alma Browne Rebecca Thorpe Kim MacDonald Krause Jeanette Lopez Bulthuis Tara Hann-Shuey Tara Snay Turley Rosemary Grant Barbara Sue Attwood Lee Shanks Anthony James Mattocks The Facial Pain Research Foundation The Facial Pain Association John Speece Outi Elo Chris J. Nolze Kristen Elizabeth Sears Gladys M Rhodes Kenny Wilmont Elizabeth Sirrell @betsytayloralexander Maureen Stone Carol Levy Mabel Contreras Nancy Lawrence Brian Whitaker Wendy McAninch Megan Forney Hamilton Avis Frick William Clark Dennis L Wiant Janet McGee Stephanie Blough Martha Garrett Brogan Lefebvre Woll Dawn Monarch Ron Blair Angela Harrell Freeman Erika Conrad-Wess Howard TechauCathy L. McKinnon If my brain did not tag you please know you're also in my thankful heart!
Please sign our petition to the World Health Organization
No money needed for the above TN Petition. Just add your name, email address, then hit the "sign now" button and close out.
Sponsor by TNnME (Trigeminal Neuralgia and Me), The International TN Awareness Fighters, Caregivers, friends, and family from around the world.
People signing this petition are supporting Oct. 7th as the official International Awareness Day for (TN) Trigeminal Neuralgia and Facial Pain Disorders and asking the World Health Organization to add Trigeminal Neuralgia to their health topic list.
Adding Trigeminal Neuralgia to their health topic list of illnesses will expand awareness, grant access to further resources, and create opportunities for funding and research. TN is...characterized by episodes of intense pain in the face originating from the Trigeminal Nerve.
The pain felt is the most excruciating known to man. This condition is so rare that only 1 in 20,000 people have it as some might say, but that number could be higher due to misdiagnosis. We must inform people of what Trigeminal Neuralgia is and its characteristic, symptoms & treatments. Our letter to the World Health Organization and information on (WHO) Recognizing Chronic Pain as a Disease.
Sponsor by TNnME (Trigeminal Neuralgia and Me), The International TN Awareness Fighters, Caregivers, friends, and family from around the world.
People signing this petition are supporting Oct. 7th as the official International Awareness Day for (TN) Trigeminal Neuralgia and Facial Pain Disorders and asking the World Health Organization to add Trigeminal Neuralgia to their health topic list.
Adding Trigeminal Neuralgia to their health topic list of illnesses will expand awareness, grant access to further resources, and create opportunities for funding and research. TN is...characterized by episodes of intense pain in the face originating from the Trigeminal Nerve.
The pain felt is the most excruciating known to man. This condition is so rare that only 1 in 20,000 people have it as some might say, but that number could be higher due to misdiagnosis. We must inform people of what Trigeminal Neuralgia is and its characteristic, symptoms & treatments. Our letter to the World Health Organization and information on (WHO) Recognizing Chronic Pain as a Disease.
Facial Pain Research Foundation (FPRF) - Pushing research towards a CURE for Facial Pain Disorders
TNnME TN Zazzle Awareness Store - Gifts for spreading awareness
Amazon Smile Program - Purchase items under Amazon Smile and 0.5% of the purchase price will go to the FPRF!
Stop-It Coffee for a Cause - 100% of purchase price will go to FPRF in loving memory of Cori Murdoch
Laugh Your Face Off - is a comedy fundraiser started by Amy and Pat Tomasulo to benefit The Facial Pain Research Foundation
TNnME TN Zazzle Awareness Store - Gifts for spreading awareness
Amazon Smile Program - Purchase items under Amazon Smile and 0.5% of the purchase price will go to the FPRF!
Stop-It Coffee for a Cause - 100% of purchase price will go to FPRF in loving memory of Cori Murdoch
Laugh Your Face Off - is a comedy fundraiser started by Amy and Pat Tomasulo to benefit The Facial Pain Research Foundation
Joining our voices together, we can be heard around the world!
- Welcome to this year 2021 Light Up Teal 4 TN October 7th International Trigeminal Neuralgia Awareness Day!
- Visit this page on how you could help send Light Up Teal Request
- See 2020 Light Up Teal 4 TN for last year postpone TN awareness day
- Light Up Teal Hashtags! #LightUpTeal #trigeminalneuralgia #FacialPainDisorders #TNTeal
Do you know?
TNnME Popular Pages
- Here is where you can buy our Trigeminal Neuralgia & Facial Pain Disorder Awareness Ribbon
- If you're interested to purchase Trigeminal Neuralgia Awareness Products please visit our TN Awareness Store on Zazzle!
- Have you or someone you love been diagnose with Trigeminal Neuralgia? Go here for What is Trigeminal Neuralgia?
- Check out our page on how understand the different Facial Pain Disorders
- No donation is too small. You can help push research for a CURE for Facial Pain Disorders by going to our Research 4 our Cure donation page.
- Do you love coffee? Purchase Stop It Coffee which all proceeds go to the Facial Pain Research Foundation in the memory of Cori Murdoch.
- Did you know children and teens also live with the pain of Trigeminal Neuralgia and Facial Pain Disorders?
- Did you know we have Proclamations for Trigeminal Neuralgia Awareness Day?
- Did you know that the Gallixa may be able to soothe some of your facial pain along with other body pain?
- “Laugh Your Face Off,” a comedy fundraiser to benefit The Facial Pain Research Foundation
UPDATE 25 May 2019
WHO Recognizes Chronic Pain as Disease With New Coding System
The World Health Organization has adopted a new classification system for chronic pain, assigning it the code ICD-11 in a revision of the International Classification of Diseases (ICD).
It’s the first time the ICD will include a specific diagnostic code for chronic pain.
For example, neuropathic pain can be a symptom of cancer or chemotherapy, while trigeminal neuralgia could fall under neuropathic or orofacial pain. he new coding system will make it easier for physicians to diagnose, classify and get treatment for chronic pain patients.
Insurers will use the new codes to authorize payments and researchers can use them to more easily track and measure the effectiveness of therapies. That’s the good news. The bad news is that the ICD changes won’t formally take effect until Jan. 1, 2022. Source: Pain News
WHO Recognizes Chronic Pain as Disease With New Coding System
The World Health Organization has adopted a new classification system for chronic pain, assigning it the code ICD-11 in a revision of the International Classification of Diseases (ICD).
It’s the first time the ICD will include a specific diagnostic code for chronic pain.
For example, neuropathic pain can be a symptom of cancer or chemotherapy, while trigeminal neuralgia could fall under neuropathic or orofacial pain. he new coding system will make it easier for physicians to diagnose, classify and get treatment for chronic pain patients.
Insurers will use the new codes to authorize payments and researchers can use them to more easily track and measure the effectiveness of therapies. That’s the good news. The bad news is that the ICD changes won’t formally take effect until Jan. 1, 2022. Source: Pain News
Read our stories about living with Trigeminal Neuralgia and Facial Pain Disorders
- Toni Saunders Story
- Miriam Fraser Story
- Susan Wiffill Story
- Lagi Leau Story
- Ron Blair Story
- Betsy Alexander Story
- Rebecca Thorpe Story
- Daniel R "Bob" Snodgrass Story
- Karen Brigham Story
- Cori Murdoch Story
- Artist Tara Shuey Story
- Nikki Samuel Story
- Frank Skoviera Story
- Jennifer Rodgers Houghton Story
- Honoring the Taken
- Maureen Stone Story
- Holley Pesina Story
- Kristina Pelly-Filocamo Story
- Dawn Raye Winner Story
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Photo used under Creative Commons from Eliza Stoneshield
