TNnMe: Trigeminal Neuralgia and Me
Due to the COVID19 our Light Up Teal for 2020 many places cancelled but we're going to celebrate another year of awareness.
Our prayers goes out to the families of those lost and effected by COVID19.
Due to the COVID19 our Light Up Teal for 2020 many places cancelled but we're going to celebrate another year of awareness.
Our prayers goes out to the families of those lost and effected by COVID19.
Please sign our petition to the World Health Organization
NO $ needed for your signature on this petition just your name, email address, then hit the "Sign Now" button and close out.
Sponsor by TNnME (Trigeminal Neuralgia and Me), The International TN Awareness Fighters, Caregivers, friends, and family from around the world.
People signing this petition are supporting Oct. 7th as the official International Awareness Day for Trigeminal Neuralgia and Facial Pain Disorders and asking the World Health Organization to add Trigeminal Neuralgia to their “Health Topic List”
Adding Trigeminal Neuralgia to their health topic list of illnesses will expand awareness, grant access to further resources, and create opportunities for funding and research.
TN is...characterized by episodes of intense pain in the face originating from the Trigeminal Nerve.
The pain felt is the most excruciating known to man. This condition is so rare that only 1 in 20,000 people have it as some might say, but that number could be higher due to misdiagnosis.
We must inform people of what Trigeminal Neuralgia is and its characteristic, symptoms & treatments.
Joining our voices together, we can be heard around the world!
See 2020 Light Up Teal 4 TN for this year images
210 Images for 2019 Light Up Teal 4 TN
148 Images for 2018 Light Up Teal 4 TN
131 Images for 2017 Light Up Teal 4 TN
143 Images for 2016 Light Up Teal 4 TN
84 Images for 2015 Light Up Teal 4 TN
61 Images for 2014 Light Up Teal 4 TN
19 Images for 2013 Light Up Teal 4 TN
Support Trigeminal Neuralgia & Facial Disorders by spreading Awareness!
The International TN Awareness Ribbon is available for your purchase, with funds going to the Facing Facial Pain Research Foundation to do research for a CURE.
This year campaign is dedicated to promoting to the World Health Organization (WHO).
Light Up Teal Hashtags!
#LightUpTeal #trigeminalneuralgia #FacialPainDisorders #TNTeal
Sponsor by TNnME (Trigeminal Neuralgia and Me), The International TN Awareness Fighters, Caregivers, friends, and family from around the world.
People signing this petition are supporting Oct. 7th as the official International Awareness Day for Trigeminal Neuralgia and Facial Pain Disorders and asking the World Health Organization to add Trigeminal Neuralgia to their “Health Topic List”
Adding Trigeminal Neuralgia to their health topic list of illnesses will expand awareness, grant access to further resources, and create opportunities for funding and research.
TN is...characterized by episodes of intense pain in the face originating from the Trigeminal Nerve.
The pain felt is the most excruciating known to man. This condition is so rare that only 1 in 20,000 people have it as some might say, but that number could be higher due to misdiagnosis.
We must inform people of what Trigeminal Neuralgia is and its characteristic, symptoms & treatments.
Joining our voices together, we can be heard around the world!
See 2020 Light Up Teal 4 TN for this year images
210 Images for 2019 Light Up Teal 4 TN
148 Images for 2018 Light Up Teal 4 TN
131 Images for 2017 Light Up Teal 4 TN
143 Images for 2016 Light Up Teal 4 TN
84 Images for 2015 Light Up Teal 4 TN
61 Images for 2014 Light Up Teal 4 TN
19 Images for 2013 Light Up Teal 4 TN
Support Trigeminal Neuralgia & Facial Disorders by spreading Awareness!
The International TN Awareness Ribbon is available for your purchase, with funds going to the Facing Facial Pain Research Foundation to do research for a CURE.
This year campaign is dedicated to promoting to the World Health Organization (WHO).
Light Up Teal Hashtags!
#LightUpTeal #trigeminalneuralgia #FacialPainDisorders #TNTeal
Below comments on our Trigeminal Neuralgia Petition
- More awareness in the medical field, optometrist and ER's is needed based on experience with TN.
- this type of action long overdue. the medical fraternity
- must declare this illness in disability category. there is no lasting relief from pain even MVD fails after sometime. thanks 4 ur efforts
- Please consider allowing this day to provide awareness about TN!
- Anyone who has suffered from the presence of this monster deserves at least awareness of it's agony.
- TN is a somewhat silent disease as people can't see the patient suffering
- A fantastic resource and comfort to sufferers, some of whom find it absolutely impossible to leaf normal lives.
- I have been living with this for 4 years now. it is horrific and I pray for all of us that have it
- I had MVD surgery for Trigeminal Neuralgia, but don't know what causes it and if it will come back.
- 10 years TN
- I'm signing this petition for a very dear friend
- I suffer from TN too! We need more education & more solutions for everyone that suffers from TN.
- Full support!
- I've seen the debilitating pain and unforeseen life changes TN can bring in the life of my best friend!
- I hope more research can go into this debilitating disorder!!
- i am so excited to hear about this! this awareness day is greatly needed!
- This is a great idea! So few people understand the pain of TN
- I have been living with TN for 3 yes after a root canal.
- more aware of this before thu go of their moee mor
- to acquire better recognition, treatment and understanding for
- this devastating disease
- Please Lord, let there be answers soon for my friend and people who suffer horribly with this.
- I finally had MVD due to excruciating and unbearable pain.
- we need more resarch done. people need know what it we going thought it sp hard wxplain sometimes
- i WATCH MY DAUGHTER EVERY DAY SUFFERING FROM THIS TERRIBLE CONDITION.
- I watch my daughter every day suffering from this terrible condition.
- I have TN since 1993
- Full support
UPDATE 25 May 2019
WHO Recognizes Chronic Pain as Disease With New Coding System
The World Health Organization has adopted a new classification system for chronic pain, assigning it the code ICD-11 in a revision of the International Classification of Diseases (ICD).
It’s the first time the ICD will include a specific diagnostic code for chronic pain.
For example, neuropathic pain can be a symptom of cancer or chemotherapy, while trigeminal neuralgia could fall under neuropathic or orofacial pain. he new coding system will make it easier for physicians to diagnose, classify and get treatment for chronic pain patients.
Insurers will use the new codes to authorize payments and researchers can use them to more easily track and measure the effectiveness of therapies. That’s the good news. The bad news is that the ICD changes won’t formally take effect until Jan. 1, 2022. Source: Pain News
New! Facial Pain Awareness Month presented by The Facial Pain Advocacy Alliance
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Photo used under Creative Commons from Eliza Stoneshield
