Dear World Health Organization: Can You Help Us?
UPDATE 25 May 2019
WHO Recognizes Chronic Pain as Disease With New Coding System
The World Health Organization has adopted a new classification system for chronic pain, assigning it the code ICD-11 in a revision of the International Classification of Diseases (ICD). It’s the first time the ICD will include a specific diagnostic code for chronic pain.
For example, neuropathic pain can be a symptom of cancer or chemotherapy, while trigeminal neuralgia could fall under neuropathic or orofacial pain.
The new coding system will make it easier for physicians to diagnose, classify and get treatment for chronic pain patients. Insurers will use the new codes to authorize payments and researchers can use them to more easily track and measure the effectiveness of therapies. That’s the good news.
The bad news is that the ICD changes won’t formally take effect until January 1, 2022.
We are asking the World Health Organization to add Trigeminal Neuralgia on their "Health Topic List"
Lack of funding and awareness means there is little accurate data on exactly how many global citizens are currently facing the destructive plight of this illness. Information from the Facial Pain Research Foundation suggests it is approximately 4 to 8 million sufferers worldwide. Adding Trigeminal Neuralgia to your list of illnesses will expand awareness, grant access to further resources, and create opportunities for funding and research.
What is Trigeminal Neuralgia? What is Facial Pain Disorders?
"Trigeminal neuralgia (TN) is considered to be one of the most painful afflictions known to medical practice. TN is a disorder of the fifth cranial (trigeminal) nerve. The typical or “classic” form of the disorder (called TN1) causes extreme, sporadic, sudden burning or shock-like facial pain in the areas of the face where the branches of the nerve are distributed – lips, eyes, nose, scalp, forehead, upper jaw, and lower jaw. The pain episodes last from a few seconds to as long as two minutes. These attacks can occur in quick succession, in volleys lasting as long as two hours. The “atypical” form of the disorder (called TN2), is characterized by constant aching, burning, stabbing pain of somewhat lower intensity than TN1. Both forms of pain may occur in the same person, sometimes at the same time. The trigeminal nerve is one of 12 pairs of nerves that are attached to the brain. The nerve has three branches that conduct sensations from the upper, middle, and lower portions of the face, as well as the oral cavity, to the brain."
Source: Facial Pain Association
Lack of funding and awareness means there is little accurate data on exactly how many global citizens are currently facing the destructive plight of this illness. Information from the Facial Pain Research Foundation suggests it is approximately 4 to 8 million sufferers worldwide. Adding Trigeminal Neuralgia to your list of illnesses will expand awareness, grant access to further resources, and create opportunities for funding and research.
What is Trigeminal Neuralgia? What is Facial Pain Disorders?
"Trigeminal neuralgia (TN) is considered to be one of the most painful afflictions known to medical practice. TN is a disorder of the fifth cranial (trigeminal) nerve. The typical or “classic” form of the disorder (called TN1) causes extreme, sporadic, sudden burning or shock-like facial pain in the areas of the face where the branches of the nerve are distributed – lips, eyes, nose, scalp, forehead, upper jaw, and lower jaw. The pain episodes last from a few seconds to as long as two minutes. These attacks can occur in quick succession, in volleys lasting as long as two hours. The “atypical” form of the disorder (called TN2), is characterized by constant aching, burning, stabbing pain of somewhat lower intensity than TN1. Both forms of pain may occur in the same person, sometimes at the same time. The trigeminal nerve is one of 12 pairs of nerves that are attached to the brain. The nerve has three branches that conduct sensations from the upper, middle, and lower portions of the face, as well as the oral cavity, to the brain."
Source: Facial Pain Association
Dear World Health Organization: What If you Could See Our Pain Would You Help Us?
Dear World Health Organization: Do you know Kids Get TN Too?
Dear World Health Organization: Did You Know The Facial Pain Research Foundation Is Trying To Find A CURE?!
Unlocking DNA to Find A Cure For Trigeminal Neuralgia
The Facial Pain Research Foundation’s first international research project to find
a cure is underway and it seeks to discover the answers to “Why Me?” and lead
scientists to developing a cure.
The Foundation’s Trustees are excited to announce their fourth research project
entitled “In Search of A Cure.. Source The Facial Pain Research Foundation
The Facial Pain Research Foundation’s first international research project to find
a cure is underway and it seeks to discover the answers to “Why Me?” and lead
scientists to developing a cure.
The Foundation’s Trustees are excited to announce their fourth research project
entitled “In Search of A Cure.. Source The Facial Pain Research Foundation
Dear World Health Organization: Did You Know We Have International Support Groups?
Bring awareness to our TNA/FPA Associations and Support Groups.
Web-sites and public support pages to educate, raise awareness and share the latest information about TN, information to help you cope with the pain, etc. This information is provided for all to share.
Here are a few links:
EndTN
Facial Pain Research Foundation FB page
Facial Pain Association FB Page
LivingwithFacialPain Web-site
TNAC Trigeminal Neuralgia Association of Canada
Trigeminal Neuralgia Association UK Facing Pain Together
Trigeminal Neuralgia Association Australia
Trigeminal Neuralgia Support New Zealand
CaTNA Canadian Trigeminal Neuralgia Association
Association Quebecois De La Douleur Chronigue
AFAT (Association Francaise Algies Trigeminal)
Ireland Support Group
Teens with Trigeminal Neuralgia
Alaska Trigeminal Neuralgia
International Resources:
USA: Working Together
Brazil
Finland
United Kingdom
France
Sweden
Netherlands
Canada
Web-sites and public support pages to educate, raise awareness and share the latest information about TN, information to help you cope with the pain, etc. This information is provided for all to share.
Here are a few links:
EndTN
Facial Pain Research Foundation FB page
Facial Pain Association FB Page
LivingwithFacialPain Web-site
TNAC Trigeminal Neuralgia Association of Canada
Trigeminal Neuralgia Association UK Facing Pain Together
Trigeminal Neuralgia Association Australia
Trigeminal Neuralgia Support New Zealand
CaTNA Canadian Trigeminal Neuralgia Association
Association Quebecois De La Douleur Chronigue
AFAT (Association Francaise Algies Trigeminal)
Ireland Support Group
Teens with Trigeminal Neuralgia
Alaska Trigeminal Neuralgia
International Resources:
USA: Working Together
Brazil
Finland
United Kingdom
France
Sweden
Netherlands
Canada
Dear World Health Organization: Do You Know That World Landmarks Turns Teal Except YOU on October 7th every year?
Source: World Landmarks Turn Teal for TN
Dear World Health Organization: Did You Know We Have A Intl Trigeminal Neuralgia Awareness Ribbon!
Dear World Health Organization: Why Are You Not Answering Us?
Over 26,000 Signatures are asking the World Health Organization to add Trigeminal Neuralgia on their "Health Topic List" Source TN Online Petition
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