TNNME: TRIGEMINAL NEURALGIA and ME
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  • Intl TN Awareness Petition
  • Trigeminal Neuralgia Awareness
    • TN/FP Resources >
      • TN: Working Together >
        • United States Resources
        • Ireland Resources
        • United Kingdom Resources
        • Australia & New Zealand Resources
        • Netherlands Resources
        • Finland Resources
        • Canada Resources
        • Brazil Resources
        • Why Does Pain Get Worse When a Storm Is Coming?
        • TN & Social Security Disability Help
  • International TN & FP Ribbon
    • Countdown Clock
    • Intl TN Awareness Videos
    • Intl TN Magazine
    • Poems by Intl TNers
    • Cherokee Hat Trick by Brian Whitaker
    • Intl Arts 4 a CURE
    • Photos of TN & Facial Pains
    • Author Brian Whitaker: Going Down Short Story >
      • The Pharmacy by Brian Whitaker
      • Gabapentin
      • Shakespeare My TN Buddy
      • Having a Good Time-TN Version
      • 1126 Tomcat Way Full GM Edit
      • Author Brian Whitaker: The Rat
      • There's an elephant on my face
      • TN The Pain Awakens
  • TN Awareness Products
  • What is Trigeminal Neuralgia?
    • Facial Pains Disorders
    • Battle Scars of TN and FP
    • Research 4 our CURE
    • Stop It Coffee For A Cause
  • 2022 Light Up Teal 4TN
  • 2021 Light Up Teal 4 TN
  • Our 2021 TN Day
  • 2020 Light Up Teal Trigeminal Neuralgia
    • Lighting Request Info
    • Trigeminal Neuralgia: Why Light Up Teal?
    • Our 2019 TN Awareness Day
    • 2018 Intl Light Up Teal
    • Our 2018 TN Awareness Day >
      • 2017 Light Up Teal 4 TN & FP
      • 2016 Light Up Teal 4 TN
      • 2016 Oct 7 Intl TN Day Events
      • 2016 Intl TN Awareness Day Events
      • 2015 Light Up Teal
      • 2015 TN Day Photos
      • 2014 Light Up Teal
      • Oct 7th 2014 Intl TN Day Photo >
        • 2013 Light Up Teal
        • Betsy Alexander's TN Story
        • Artist Tara Shuey Story
        • Maureen Stone Story
        • Artist Tara: Loved one’s perspectives…………
        • Miriam Fraser's TN Journey
        • Honoring the Taken
        • Rebecca Thorpe Story
        • Nikki Samuel Story
        • Holley Pesina TN Story
        • Susan Wiffill Story
        • Daniel R. "Bob" Snodgrass
        • Frank Skoviera Story
        • Kristina Pelly-Filocamo Story
        • Lagi Leau Story
        • Karen Brigham Story
        • Jennifer Rodgers Houghton Story
        • Dawn Raye Winner
        • Ron Blair Story
      • 2016 Race to Save Face
      • Children & Teens with TN
  • TN: Media Center
    • TN Proclamations
    • Open Letter: Dentist and Oral Surgeons
    • TN & the ER ROOM
    • Open Letter: ER DRs
    • AN OPEN LETTER TO DOCTORS
  • To WHO
    • Hello WHO >
      • TNNME (Toni) Story
      • It's ME on TNnME 10/7/2017
      • 9/21/2016 TNnME Press Release
      • Living in the moment
      • My TN Symptoms
      • Hormones with Trigeminal Neuralgia
      • Trigeminal Neuralgia and Me
      • Cluster Headache Links
      • (CH) Abortive & Preventive treatments
      • Cluster Headache
      • Contact Form
  • Be Strong
TNNME: TRIGEMINAL NEURALGIA and ME

Hello (WHO) Can you help us?

​UPDATE 25 May 2019
WHO Recognizes Chronic Pain as Disease With New Coding System
​
The World Health Organization has adopted a new classification system for chronic pain, assigning it the code ICD-11 in a revision of the International Classification of Diseases (ICD). It’s the first time the ICD will include a specific diagnostic code for chronic pain.
For example, neuropathic pain can be a symptom of cancer or chemotherapy, while trigeminal neuralgia could fall under neuropathic or orofacial pain.
The new coding system will make it easier for physicians to diagnose, classify and get treatment for chronic pain patients. Insurers will use the new codes to authorize payments and researchers can use them to more easily track and measure the effectiveness of therapies. That’s the good news. 
The bad news is that the ICD changes won’t formally take effect until January 1, 2022. 
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Asking the World Health Organization to add Trigeminal Neuralgia on their "Health Topic List"

Lack of funding and awareness means there is little accurate data on exactly how many global citizens are currently facing the destructive plight of this illness. Information from the Facial Pain Research Foundation suggests it is approximately 4 to 8 million sufferers worldwide. Adding Trigeminal Neuralgia to your list of illnesses will expand awareness, grant access to further resources, and create opportunities for funding and research. 
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What is Trigeminal Neuralgia?          What is Facial Pain Disorders?

"Trigeminal neuralgia (TN) is considered to be one of the most painful afflictions known to medical practice.  TN is a disorder of the fifth cranial (trigeminal) nerve. The typical or “classic” form of the disorder (called TN1) causes extreme, sporadic, sudden burning or shock-like facial pain in the areas of the face where the branches of the nerve are distributed – lips, eyes, nose, scalp, forehead, upper jaw, and lower jaw.  The pain episodes last from a few seconds to as long as two minutes. These attacks can occur in quick succession, in volleys lasting as long as two hours. The “atypical” form of the disorder (called TN2), is characterized by constant aching, burning, stabbing pain of somewhat lower intensity than TN1. Both forms of pain may occur in the same person, sometimes at the same time. The trigeminal nerve is one of 12 pairs of nerves that are attached to the brain. The nerve has three branches that conduct sensations from the upper, middle, and lower portions of the face, as well as the oral cavity, to the brain."
​Source: Facial Pain Association

Dear World Health Organization:  What If you Could See Our Pain Would You Help Us?

Dear World Health Organization: Do you know Kids Get TN Too?

Dear World Health Organization: Did You Know The Facial Pain Research Foundation Is Trying To Find A CURE?!

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Unlocking DNA to Find A Cure For Trigeminal Neuralgia
The Facial Pain Research Foundation’s first international research project to find
a cure is underway and it seeks to discover the answers to “Why Me?” and lead
scientists to developing a cure.
 The Foundation’s Trustees are excited to announce their fourth research project
entitled “In Search of A Cure.. Source The Facial Pain Research Foundation

Dear World Health Organization: Did You Know We Have International Support Groups?

Dear World Health Organization: Do You Know That World Landmarks Turns Teal Except YOU on October 7th every year?

Source: World Landmarks Turn Teal for TN

Dear World Health Organization: Did You Know We Have A Intl Trigeminal Neuralgia Awareness Ribbon!

Dear World Health Organization:  Why Are You Not Answering Us?

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​Over 28,000 Signatures are asking the World Health Organization to add Trigeminal Neuralgia on their "Health Topic List" Source TN Online Petition


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