TNNME: TRIGEMINAL NEURALGIA and ME
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  • Intl TN Awareness Petition
  • Trigeminal Neuralgia Awareness
    • TN/FP Resources >
      • TN: Working Together >
        • United States Resources
        • Ireland Resources
        • United Kingdom Resources
        • Australia & New Zealand Resources
        • Netherlands Resources
        • Finland Resources
        • Canada Resources
        • Brazil Resources
        • Why Does Pain Get Worse When a Storm Is Coming?
        • TN & Social Security Disability Help
  • International TN & FP Ribbon
    • Countdown Clock
    • Intl TN Awareness Videos
    • Intl TN Magazine
    • Poems by Intl TNers
    • Cherokee Hat Trick by Brian Whitaker
    • Intl Arts 4 a CURE
    • Photos of TN & Facial Pains
    • Author Brian Whitaker: Going Down Short Story >
      • The Pharmacy by Brian Whitaker
      • Gabapentin
      • Shakespeare My TN Buddy
      • Having a Good Time-TN Version
      • 1126 Tomcat Way Full GM Edit
      • Author Brian Whitaker: The Rat
      • There's an elephant on my face
      • TN The Pain Awakens
  • TN Awareness Products
  • What is Trigeminal Neuralgia?
    • Facial Pains Disorders
    • Battle Scars of TN and FP
    • Research 4 our CURE
    • Stop It Coffee For A Cause
  • 2022 Light Up Teal 4TN
  • 2021 Light Up Teal 4 TN
  • Our 2021 TN Day
  • 2020 Light Up Teal Trigeminal Neuralgia
    • Lighting Request Info
    • Trigeminal Neuralgia: Why Light Up Teal?
    • Our 2019 TN Awareness Day
    • 2018 Intl Light Up Teal
    • Our 2018 TN Awareness Day >
      • 2017 Light Up Teal 4 TN & FP
      • 2016 Light Up Teal 4 TN
      • 2016 Oct 7 Intl TN Day Events
      • 2016 Intl TN Awareness Day Events
      • 2015 Light Up Teal
      • 2015 TN Day Photos
      • 2014 Light Up Teal
      • Oct 7th 2014 Intl TN Day Photo >
        • 2013 Light Up Teal
        • Betsy Alexander's TN Story
        • Artist Tara Shuey Story
        • Maureen Stone Story
        • Artist Tara: Loved one’s perspectives…………
        • Miriam Fraser's TN Journey
        • Honoring the Taken
        • Rebecca Thorpe Story
        • Nikki Samuel Story
        • Holley Pesina TN Story
        • Susan Wiffill Story
        • Daniel R. "Bob" Snodgrass
        • Frank Skoviera Story
        • Kristina Pelly-Filocamo Story
        • Lagi Leau Story
        • Karen Brigham Story
        • Jennifer Rodgers Houghton Story
        • Dawn Raye Winner
        • Ron Blair Story
      • 2016 Race to Save Face
      • Children & Teens with TN
  • TN: Media Center
    • TN Proclamations
    • Open Letter: Dentist and Oral Surgeons
    • TN & the ER ROOM
    • Open Letter: ER DRs
    • AN OPEN LETTER TO DOCTORS
  • To WHO
    • Hello WHO >
      • TNNME (Toni) Story
      • It's ME on TNnME 10/7/2017
      • 9/21/2016 TNnME Press Release
      • Living in the moment
      • My TN Symptoms
      • Hormones with Trigeminal Neuralgia
      • Trigeminal Neuralgia and Me
      • Cluster Headache Links
      • (CH) Abortive & Preventive treatments
      • Cluster Headache
      • Contact Form
  • Be Strong
TNNME: TRIGEMINAL NEURALGIA and ME

Neuralgia and Facial Pain Disorders Ireland resources

​Trigeminal Neuralgia Ireland 

Trigeminal Neuralgia Ireland
Trigeminal Neuralgia Ireland
About Trigeminal Neuralgia Support Group Ireland.

We formed in 2001 as a small group of fellow suffers.
Our first meeting was in the Spa Hotel in Lucan. Since then we have shifted venue a number of times and now meet up in the Glashaus Hotel in Tallaght, Dublin 24.
We see our role as a support for all those diagnosed with TN and with limited funds try to raise awareness throughout Ireland. This is a story from one of our members.

"I got Trigeminal Neuralgia July 2013,
It started as an electrical shock pain in my jaw.
The pain was like cold ice cream on a sensitive filling, except for no filling in that part of my jaw. After a couple of days, I was certain that every tooth in the left/right hand side of my upper/lower jaw was rotten.
The pain also leads up to my ear, which isn't uncommon with dental issues.
I went to the dentist who found nothing, my teeth and gums were perfect in his opinion.
Despite his findings, he prescribed me some anti-biotics.
One week and a doctor on call visit later, I went to my GP. Within minutes, he diagnosed me as having Trigeminal Neuralgia."

This story is not uncommon. TN afflicts 4.3 per 100,000 individuals (per year) and is often referred as the worst pain known to mankind.
The road to diagnosis can sometimes be bumpy.
Lots of GP's and dentists may not be very familiar with TN, and it could take a long time and many Neurology referrals for a firm diagnosis to be made.
Sometimes an issue with the Trigeminal Nerve can be seen on an MRI scan, but most of the time nothing shows up.
There is no test for TN, just doctors' expertise and tests that rule everything else out.

Medications are prescribed to alleviate symptoms and manage pain.
These include: carbamazepine, baclofen, lamotrigine, oxcarbazepine, phenytoin, gabapentin, pregabalin

There are surgeries and procedures that can be carried out:
> Microvascular Decompression (MVD)
> Gamma Knife Radiosurgery
> Nerve Blocks

Living with Trigeminal Neuralgia is not easy, and often many things in your life will change.
It is the little things that matter, for example: I cannot go out on a cold, windy day.
Even if there is a slight breeze, the pain it can cause is excruciating. Certain foods are hard to eat with TN pain. I cannot remember the last time that I ate an apple.
​
The medications that we get prescribed can also have a negative effect. Weight gain, memory loss, drowsiness and dizziness are to name a few.

Despite all of this, it is important not to lose hope. There are new studies being conducted all the time, new drug trials and hopefully all of this will lead to a cure. The specialists in this field are absolutely amazing, and they really try their best to try and beat this pain.

Above all, we are a group of people who suffer from this condition. We aim to support each other, provide awareness and we strive to do the best we can to make people understand what TN is. We hold meetings every couple of months where we have an open forum or invite guest speakers to take part.

As part of our awareness campaign, we aim to find and help every person suffering in silence in Ireland.
Our email address is: ireland.tn@gmail.com
Find us on Facebook: Trigeminal Neuralgia Support Group Ireland

Other resources:
> Chronic Pain Ireland

Chronic Pain Ireland is a charity that is committed to create awareness of all chronic pain, and to support those affected and their families. Chronic Pain Ireland often hold seminars and workshops
> The Migraine Association of Ireland

The Migraine Association of Ireland is a registered charity that provides help and information for those with Migraine and headache disorders.
> Jaw Pain Ireland
Jaw Pain Ireland is a website dedicated to the management of Orofacial and Temporomandibular (TMJ) Joint disorders.
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All information contained on TNNME web site is for informational purposes only and at no time should any content on TNNME be considered medical or legal advice or imply any action should be taken..  It is in no way intended to be used as a replacement for professional medical treatment.   TNNME makes no claims as to the scientific/clinical validity of the information on this site OR to that of the information linked to and from this site.  All information taken from the internet should be discussed with a medical professional! 
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IrisHealth.com info on What's Trigeminal Neuralgia

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